Chronic Pain

A 51 year old female living and dealing with lumbar back pain and fibromyalgia. Sharing things I do for relief, reduce stress and control weight gain.
Showing posts with label Occupational therapy. Show all posts
Showing posts with label Occupational therapy. Show all posts

Monday, October 28, 2013

A fun filled week end



Better late than never.  I should have had this up Wednesday but I honestly have not even looked at my email or much of anything else since then.  I weighed and measured that morning.  Had a very busy day then went to dinner with my girlfriends.  I really had to be picky seeing it was the beginning of the WW's week for me.  The food was delicious but the company even better.  



These ladies are great.  They didn't mind posing in different areas of restaurant before I found the best back ground.  Then we grabbed our server and had him capture a few shots.  He even let me check and make sure we were ok with them.  What a sport.  Thanks Brigitte for adding the festive boarder.  

The previous day my second appointment of the day was with the OT.  Durning treatment I was pretty uncomfortable.  She had another therapist who does the Dry Needling also known as  intramuscular stimulation  evaluate me.    I was really hoping that after Friday's session we would be able to determine there was not a need for it any longer.  I did have improvement, but not enough to change her mind about having it done.  It hurts so much in that area I can't imagine having needles inserted into these tendons or muscles. 

The session lasted longer than usual so I got a late start on my Chicken Enchilada soup when I got home.  So late I was putting it up in bowls to freeze and some for the week pretty late that night.  It was worth every minute though.  It was so good.  I entered everything in the WW recipe builder.  I made a double batch and it totaled 6 points per cup.  A cup doesn't sound like much but when you add some cheese and sour cream it is very filling.  What I was missing was the chips I enjoying dipping in when I'm not "watching it".  
Most of what goes in
Then I remembered these tortilla wraps that I like to make a turkey wrap with for a change up from bread.  I also love to make fajitas with them.  The tomato basil flavor is 1 point.  Yes, you read right.  ONE point.  The wheat is 2.  Weird, I know.  Most tortilla wraps or flat bread are 2 points.  I get them at Wal Mart but you know how that is.  Some Wal Mart's carry them and some don't.  I can't always find them when I want them.  Anyway, I decided to toast one instead of just warming to get it it crispy.  I broke into pieces and it worked lovely as "chips" to dip in my soup.  Above is most of the things that make everything come together to taste wonderful.  The chicken and the fat free half and half are missing.  The recipe calls for heavy whipping cream but I promise you it's no different with the fat free.   


Ole Mexican Foods "a better choice for your health"
toasted and broken into chips

On Thursday I kept a friends little girl at my house all day.  She is super active and kept me busy and my mind working.  She is a talker like my grandson.  Full of questions and only stops talking when she is sleeping!  An hour and a half after she left my home my granddaughter came.  Lucky for me, her mom brought her to my house and I didn't have to drive and meet her like usual. 

Tomorrow (Monday) is her birthday and she was going out of town for some "me" time.
Of course it was fine by me that A wanted to spend some time with Nonna.  Unfortunately she had to go to therapy with me on Friday morning, but I smoothed it over by stopping by the library to pick out some books she had in mind to choose.  She is starting to recognize some words so loves to read a book that has them so she can tell me the words.  

enjoying the computer
  
After OT was over we met my daughter and grandson at Chick fil A for lunch.  The kids loved it because the play area was unusually empty.  I'm glad they got to visit because the rest of my daughters week end was packed.  We had lunch and a nice visit before we each moved on to our next item on the list.  Just so happened it was Wal Mart for both of us.  The necessary evil :~{




best part of my day <3

We finally made it home around 3:30.  My friend who I mentioned earlier wanted to let her daughter and A visit because they love spending time together.  Her name starts with an A also so I'll call her A2, laugh out loud.  Her week end was full except for Friday evening.  I had told her we'd see what time we got home and how tired each of us was.  A rested and watched a movie while I put everything away then I kicked back in the recliner on the heating pad for awhile.  Shortly after they came to visit.  A2 grabbed my A and hugged her.  She said, " I love you A".  So sweet.  We took them for a wagon ride and to swing and slide next door.  Then we had supper together.  It was enjoyable for us all.  A2 and A had a great time playing together.  Neither wanted to stop.


Little monkeys 

A & A2
Saturday was P's official day of birth.  His party is next week end so I'll wait and do his birthday post with his party pictures!  4 years old.  They are both 4 and we have another on the way.  When I think back where I was 4 years ago I'm a little disappointed.  I know I can't dwell on it, but I can't help but wonder what things would be like if I wouldn't have ever had the first surgery.  I know I can't look back.  I have to keep looking forward.  That's where the H.O.P.E. comes in.  I keep telling myself that and I will as long as I have to.  It would be nice if I could get rid of some of these other ailments though.  

I brought A back to the library for Cliffard's 50th birthday.  It was nice.  They played games, sang happy birthday, made a craft and then had treats and lemonade.  I'm happy for her we went. She really enjoyed it. 

Happy 50th Cliffard

A snack after craft.

I brought her to meet her mom this evening.  Even though while loading up she was asking over and over,  Why do I have to go home?  I can tell you when she saw her mommy her story changed.  She was so happy to see her and go with her.  

So it is now Monday morning.  I was watching the nail biting World Series.  St. Louis 2 Boston 2.  Every game has been close.  Needless to say I thought I could do both.  When the game ended I gave this 100% UNTIL...I fell asleep with my laptop on my lap.  I woke up at 2 am with my fingers on the key board and my neck very uncomfortable.  I'll end here as to not delay another day waiting until tonight.

Happy Monday and to everyone a great week.
Full of H.O.P.E.
Theresa




Wednesday, October 2, 2013

A great hump day!

After 9 weeks of counting calories I've given up and returned to what works best for me.  I'd probably be at my goal now if I wouldn't have tried so save some money.  Monday when I weighed I was at 138.  Last week was 136.  That is really all I've done is bounce back and forth for 9 weeks.  

After I saw this number I went straight to my computer to sign up for WW's.   To my surprise they were having the sign up fee waived again.  I was so happy to see this.  I know in 3 months I'll be where I want to be.  That puts me at the end of Christmas so it will keep me straight during the holidays.    So my new weigh in day is Wednesday.  I said if I ever did WW's again I would not have my weigh in day be on Monday.  I always ended up with all my weekly points not used and would tend to want to use them up over the week end then weigh on Monday.  Honestly, it was never a problem but it messed with my head.  I entered in my 138 on Monday and weighed today at 137.  It asked for my weight today since I chose Wednesday as weigh in day.   Hopefully next Wednesday I will be back at what I had achieved at one point with Fitness Pal.  

I've already noticed in 3 days the difference for me.  When counting calories I was not pushed to eat my veggies and fruits I usually do.  If anything I limited them because they have calories also.  With WW's I tend to eat more of what the call "power foods"  Low in points but good for you and low in points.  Then of course I'm thrilled to have my 5 free fruits and veggies.   I know different things work for different people.  This has worked for me 3 previous times so I feel so much better going into it. 

My stimulator is still working well.  I decided to try something Mr. R mentioned once when I couldn't get any relief at all with it.  He told me to turn down to a light stimulation and leave on 24/7.   I've done this since Monday and I believe he gave me some good advise.  It may be a fluke, but I've seem to had a better 3 days with my back.  You can bet I'll leave it on like that until I don't feel like it's working.  It's important I check my battery soon because I usually turn off at night.  I'm sure it will run down a lot fast this way.  As I've mentioned in the past, if I let it go to low it takes a very long time to get totally recharged!

My elbow and tendon in my right hand is a complete other story.  Ha, after OT yesterday I was in tears.  It was so painful.  She told me I'd feel better a short while after I left due to some kind of inferred treatment that was the last thing done.  She said it lasts up to 8 hours post treatment and I do agree she was correct.  I didn't think so at first, but later in the evening everything I tried to do hurt both areas.  I sure hope this is better before I go on vacation.  I'll be back there on Friday for more torture!

Now on to the great news of the day.  Remember me mentioning going with my daughter for her ultra sound last week?  What I didn't share is we had a little scare from the doctor that had us all very concerned for baby Stevens.  I had stayed with her to see the doctor after ultra sound and I'm so glad I did.  She came in and started naming things to B that looked great with the baby.  It was obvious to both of us that she was getting to a "but", and she did!  She told B the baby had fluid around the heart.  She was not able to answer all of B's questions because that is not her "forte", the heart.  She told her she just knows that when she sees something different she doesn't take any chances.  She wanted her to go for another ultra sound at the hospital.  It was in the Maternal fetal medicine  department.  Her doctor knew it was hard not to worry, but she let her know that she has sent people there and it turned out to be nothing.  She wasn't willing to chance anything with the heart, it  needed to be evaluated with better equipment than they have at the OBGYN office.

Her doctor went out for awhile to see about scheduling her asap and my poor baby girl broke down.  Even your grown up married mother is still "your child" and it hurts to see them cry.  Especially B, she is tough as nails.  When her doctor returned we were informed she was able to get us in as soon as this Wednesday (today)  To us it seemed a long time, but to her doctor she was proud that she got her in that soon because it sometimes takes weeks.  I knew they were leaving for Disney at the end of that week so I was so happy to know she wouldn't have to be worried about that the entire vacation.

The doctor who reviewed the technicians ultra sound and report also did one himself.  The placement and amount of fluid did not have him worried.   He used the word confidant our little blessing is just fine.  He didn't feel the need to see her again either.    She does have to have another ultra sound soon with her doctor to make sure no changes have taken place.  He didn't seem it was likely.

 So turns out their vacation will be full of FUN and no WORRIES!.  P is so excited about leaving for FL.  He really doesn't know what will happen when they get there, but he can't wait to get there.   Nonna is so happy for them all.   We also found out today the sex of the baby.  It was inevitable.  My daughter didn't want to know but she had a feeling since the first ultra sound.  It was confirmed today, but what really matters to her is that he/she has a clean bill of health.  I promised to let her make the announcement to friends and family first.  (like she had to worry about me....her husband can't keep a secret for 2 seconds)  I did tell Poppa because he was waiting to hear news and when I talked to him he did ask.

After we left there my sweet girl took me to the dental office she works at and cleaned my teeth for me. We were going to do it the week before but it just wasn't the right time after the scary news.   It's always nice getting that done.  Even if it is your daughter coming at you with sharp instruments!!

I decided to try the pool today to see what reaction I would get out of my arm.  I dressed, got all the things I bring out with me and stepped down the ladder a few steps and came right back up.  Wow, a little chilly there.  The temp was  88 but no sun shining and we've had cloudy days since Monday.  I think that made it feel a little cooler than that.  My husband said we should still get a couple more weeks.  I hope so.  I'll be happy with this week end and next week.  After that we'll be away at the beach anyway.  

As usual I started this much earlier in the day and now B has posted a video telling P whether he is getting a sister or brother.  They ask him what he is hoping for and still says "a girl".  So mommy and daddy tell him he is having a SISTER.  You should see his face.  One happy little boy.  It was really cute.  I'm sitting here thinking how much love I have in my heart for my two grandchildren.  It's so full it's amazing that there will be room for more.  Honestly, seeing her little tiny body moving all around these last two weeks has firmly planted it there already.  It's amazing how you can see such detail.  Her little brain, fingers, toes, spine, her heart pumping and her beautiful profile.  God is truly awesome. I was day dreaming of the day she arrives.  Hopefully she stay put and not come early like her big brother.

Well I've carried on enough tonight.  Hope your day was as delightful as mine.  

Hope you all have pain levels that are tolerable.
With H.O.P.E.
Theresa

Sunday, September 29, 2013

It's a long one!

On Friday I went for my first appointment with the Occupational Therapist.  You know how it is on the first visit.  Just like PT, completing forms and a lot of history taking.  She measured everything from my elbow down all the way to my fingertips.  It was amazing the things she pointed out to me.  A few minutes into her exam she said to me, "your hurting aren't you?"  Yes, I answered, but it's my back.  I had sat in waiting area for 15 minutes and been in her chair for 15 minutes. I asked her how long did she think we'd be today.  About another hour she told me. 

She offered me heat and I declined.  The therapist next to her told her she should sign me up for PT on my back also while I'm there.  I told her I'd already been through that numerous times and continued at home to this day.  She asked me who I saw and was surprised I remembered her name.  As we proceeded she pointed out to me that my left elbow was swollen and fingers on left hand swollen.  I mentioned I had told my rheumatologist that it was obvious the left side was worse.  She put me in a BANDIT.  A brace worn on the forearm commonly used for lateral epicondylitis, carpal tunnel and other types of forearm and wrist pain.  She also recommended and gave me some gloves for when I'm sleeping to help with the swelling. She had me put one on to try for size and it was insane how it felt so soothing just to have a "glove" on my hand.




Whats weird is I'd been complaining to my husband that I couldn't wear my wedding ring for some time now. This is something he definitely notices.   After I'd been dieting these past weeks and dropped some pounds I still couldn't put it on.  If I did get it on I couldn't get it off without soap.  Now I know why.  


The BANDIT

During this exam they have you make various hand gestures and movements with your fingers.  You also have to squeeze and press on different instruments with your fingers/hands.  As we moved to the right arm she noticed that a certain placement with my thumb caused pain shooting from wrist to thumb area.  It's crazy the things they look at.  After this discovery she had me flip my palms over and flatten my hand.  The left side was flat across the thumb to other side of hand.  The right side was strangely uneven.  It was like an incline, not flat like the other side.  I'm assuming this had something to do with why the pain was created with the movement she had me make?  

When we're done I think I'm getting out of there and she tells me she is next going to make me a splint for my right hand. It will prevent my thumb and wrist from moving so that over time....a short time I hope, it will get better with rest.  I was cool with that.  I'm a compliant patient.  It took about 20 minutes for her to cut out this form, heat it and mold it around my wrist.  We get it on for good after trimming and smoothing ruff edges and I immediately begin to think this might be difficult being it's my right hand.  Then she drops the bombshell that I should refrain from texting.  If you use your thumb you won't be able to anyhow. 
Ha, Ha, I told her.  Most of the people I commonly text with on daily basis do not want to be on the phone.  Guess I'll be leaving some voice mails.  

Exactly at hour and a half mark we were done.  I walked out with apparatus on each side.  I asked how long I could expect my two visits next week to last and she told me an hour now that all the other stuff was out of the way.  We'll be starting the therapy next visit. 

Right arm
Left arm

My husband and I had plans to take my grandson to members night at the zoo.  I thought to myself as the day progressed, and I saw how challenging it was really going to have this brace on my hand, was I sure we could still go?  I just felt so dysfunctional.  I knew D would be able to do anything I couldn't and I was really looking forward to taking P to this event.  

We headed out at 4:15 to make our way to the zoo and instantly was shut down with a back up on the interstate.  An update from D's app told us there was a lane closure ahead and an accident on the Mississippi river bridge.  Holy cow, what luck.  We crawled for 30 minutes to get to a loup that puts you on another interstate and then we took Airline Hwy to I-110.  It was 6pm when we made it there.  An hour and a half.  It's typically a 40 minute drive from my house.  

All was well though.  We made it.  P had a great time.  He wanted to get his face painted and was willing to wait in a seriously long line.  Never complained once.  I guess he really wanted this.  His mom told me via text that he'd never had this done and we may be waiting for nothing.  Oh well, it's what he wants to do and thats what this trip was all about. How are you texting she wanted to know?  With my left thumb...slowly. 


His first face paint


After that we went to see some other activities they were having and then we came across the bubble activity.  It was a huge circle around you attached to a rope.  As you pulled the rope the circle came up and made a bubble ring around you.  It was pretty cool and P definitely wanted to try.  So, we get in another long line that he had no problem with.  It was around 7:15 and the sun was just starting to go down.  I took a picture of a young girl doing it so I could show mom what we were waiting for.  I was confidant that by the time we made it up there it would be dark.  It was as you could see by the difference in the pictures.  The mosquitos ate up my ankles and neck.  Even D was bothered with them.  He rarely gets bitten even when I end up covered with bites. I definitely wore the wrong shoes to walk around in especially when getting warm and sweating.  Just because some shoes are comfortable for some things, they are not for others.  I ended up with huge blisters on both pinky toes.  We stopped to eat on the way home then met my daughter to return P.  


Too proud!



Go Go Go everyone cheered!

I think it was around 9:30 when we made it home and I couldn't wait to take the brace off of my hand.  First I took off the BANTIT.  Other than leaving an imprint, it was fine.  I realized that it definitely was working.  There were things I did that normally cause it to really hurt and it was so mild vs moderately painful.  The brace was another story.  As I removed it I had deep imprints on the top of my hand near my knuckles.  I knew something wasn't right earlier and I should have taken it off then.  The OT said if it bothers you somewhere, take it off and we'll adjust it Tuesday.  With us being busy and I kind of brushed it off thinking it was hurting because of the correction.  I can tell you I had no pain in that area AT ALL before she put that brace on me and at that moment when I took it off and stopped to rest my hand/wrist was throbbing!  Almost to the point of tears a few minutes later.




I took some advil and propped it up on a pillow with ice.  I took pictures to show her on Tuesday and decided at that moment that I was not putting that contraption on again until I saw her on Tuesday. I'm sure it just needs to be trimmed but I can tell you I have a bad taste in my mouth for it now!  

Saturday I woke up with no pain at all in that hand/wrist. The brace today is right where I left it Friday night.  It was cutting me in between my thumb and pointer, the top of palm and on my wrist on bottom side.  My husband and I both said, "we're not doing anything today...let's take it easy."  Let's face it, that never really happens.  The morning I just did laundry but later I got into the pool and swam laps.  It had been two days off from exercise and I just had to do it.  Before that swim only my back was bothering me.  My hand had felt better when I woke up and I wore the BANDIT at all possible times.  

After swimming I decided to set up the vacuum to clean the pool.  It had been awhile.  It really wasn't too dirty but it seemed like a good time to do it.  There is a lot of hoses to be joined together involved in set up.  A twisting motion.  I told my husband after that it's crazy how you don't realize the muscles you use until they are painful to use.  Every hose I attached I cringed as I twisted it on.  As soon as I was done I put the BANDIT back on.  The plants still had to be watered.  

This is a 30 minute project front and back.  By the time I unwound and put back the hose front and back I was in tears.  When I came inside I told my husband I was going to lay down.  I literally cried my elbow hurt so bad.  What was it?  The lap swimming?  The twisting motion with the vacuum hoses. Watering the plants.  Heck, I guess maybe a combination off all things.  I don't know, but I went into depressed mode and shut down.  I put an ice pack on my elbow and alternated with heat ice heat ice for about two hours until I could stand the pain without it.  I had a HUGE pity party.  Why me?  Isn't my back enough.  Why?  Why?  Why?

Unfortunately we don't get these answers when we want them.  I tried to think of thing of things that could be worse and I came up with a lot.  When you deal with chronic pain everyday it becomes really easy to slip into depression and feeling like it's only you and why you?

The last two nights have been worst since revision surgery in May.  Friday night my hand and wrist throbbing and last night the elbow pain was unbearable.  I never left the bed after I came in from watering at 6:30.  Today has been better.  My hand has some relief but I'm dreading Tuesday to be put back into the brace after an adjustment.  It really brings some limitations. I question only because I didn't go there with pain in that area. 

I've had my BANDIT on the left side all day.  It's tender and sore but I've also REALLY taken it easy today.  Hint hint this long post. Typing is something you do that causes irritation to both problems so you'd think I'd keep it short.  I didn't type this all at one sitting.  It's been through out the day.  

My husband deals with shoulder pain on and off year after year.  He goes to PT it gets better then it comes back.  He's been swimming a good bit following seeing me swim laps.  Yesterday and this morning he volunteered at church helping prepare for a fundraiser at all masses today.  Yesterday was a lot of prep work and today he said he did a repetitive motion a lot.  I arrived home from Sam's to see him holding his shoulder (as near tears as a man can get) complaining about how bad he was hurting.  My husband rarely complains.  How can he?  I don't give him a chance.  Multiple times today I've heard some moaning and groaning while holding his shoulder.  I told him that people say they know how you feel but really they don't.  I really know how you feel babe.  Can you imagine at this moment if that pain doesn't go away with rest?  That's my life EVERYDAY!  I made sure he didn't think I did't have any sympathy for him.  It was just pointing out that I DO understand how you feel because I know, I feel it everyday.  Be grateful you always end up with relief at some point.  Something I'd give anything for.  I'm sure he'd give anything for me to have also.  Then I'd be like the person he married 9 years ago.


Maybe this caused it? He says "No"

The good news is two weeks from yesterday we're heading to the beach.  Surely when I leave my home I will take it easy and relax.  I can't believe September has just flown by us.  Tomorrow, Monday the beginning of a new week.  Let's just be joyful we're here and see what it brings us.  I know it's hard to believe here from what I write but there are many things I am thankful for.  


Have a blessed week.  Never giving up H.O.P.E. (hold on pain ends) Theresa

how the bubble ring looked with daylight


DESTINY

Watch your thoughts; they become words
Watch your words; they become actions
Watch your actions; they become habits
Watch your habits; they become character
Watch your character; it becomes your destiny